Heartbreak family help baby care unit
Last updated at 14:31, Friday, 15 August 2014
A Cockermouth family have donated almost £1,500 to the hospital which looked after their son.
Samuel Isaac Andrew Robinson was born to Andrew and Jane, of Rose Lane, on January 6 this year.
He died just three days later from a rare chromosome abnormality.
The couple were told that their baby had the condition last autumn and that children with it rarely live beyond 12 months.
They faced a heartbreaking decision whether to carry on with the pregnancy, despite knowing their time with their child was going to be short.
Mr Robinson, 44, a vet with the town’s Millcroft Veterinary Group, said: “It was very difficult but we thought it was wrong to end his life.
“We have a faith and think that life is very special. When Samuel was created it was a miracle.
“We made the decision not knowing how long we would have with him but we didn’t regret it at all.”
The couple donated £400 which had been raised at their son’s funeral, and £1,019 from a fund-raising event at Tumble Tots in Braithwaite, near Keswick.
The money will be donated to the West Cumberland Hospital’s special care baby unit in Whitehaven
Mr and Mrs Robinson’s children Hannah, aged four, and Eliana, two, attend sessions at Tumble Tots.
This week the family visited the baby unit to show their appreciation of its valuable work and to thank the staff who cared for Samuel.
Mrs Robinson said: “Despite all his problems we do not believe he was in any pain and in the end he just forgot how to breathe.”
Dr Deb Lee, consultant paediatrician, said: “The Robinson family has been through an incredibly difficult ordeal.
“The tragedy around a diagnosis of this nature can be truly overwhelming, particularly for the parents, but Andrew and Jane and their young family have been very strong making some critical and brave decisions that they felt were right for Samuel.”
Mrs Robinson added: “Samuel will always be an important part of our family. None of us know how long our lives will be and Samuel only had three-and-a-half days but they were very precious.”
The condition trisomy 13, which is also called Patau syndrome, involves a chromosome defect which occurs in one of about every 10,000 babies.
First published at 14:21, Friday, 15 August 2014
Published by http://www.timesandstar.co.uk
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