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Friday, 19 December 2014

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Frustrating delay to Megan’s US surgery

A disabled Cockermouth girl’s dream of being able to ride a bicycle has suffered a major setback.

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BETTER DAY: Family and friends of Cockermouth youngster Megan White, centre, celebrate reaching the total of £40,000 in just one year to send Megan to America to have treatment

Megan White, 14, was diagnosed at the age of two with cerebral palsy and spastic diplegia, which means she has poor co-ordination and trouble walking.

She uses a walking stick, wheelchair or mobility scooter to get around.

Her mum Kerrie Iredale, 37, of Bellbrigg Lonning, launched a campaign called Megan’s Dream in 2012 to raise £40,000 to get pioneering treatment in North America to help with her mobility.

The target was reached late last year, thanks to several donations from the community.

Megan’s ambition is that one day she will recover sufficiently to ride a bike like her sisters, her twin Leah and Kara.

But Miss Iredale revealed this week that the St Louis Children’s Hospital, where Megan was due to get treatment, has written to say that the operation cannot go ahead at the moment because she has problems with one of her hips.

After reviewing Megan’s medical records, the hospital said that the skin on one of her hips was shallow and was one-third uncovered.

The hospital said the treatment, which Megan hoped to get in America, would not be effective without her hip first being treated.

The findings have left Miss Iredale frustrated because, she said, Megan has had several medical appointments in the UK and the hip problem was never diagnosed.

She plans to file a complaint about a specialist and will seek advice from a doctor about how best to treat Megan’s hip.

The St Louis hospital has said it would re-evaluate Megan’s case once her hip was stable.

Miss Iredale said: “It has left me and Megan really upset. She was hoping to get this treatment and get it sorted.

“I can’t understand why her hip problem hasn’t been picked up here first.

“I constantly feel like I’m hitting a brick wall and I have got to get over these hurdles. I’m not giving up, I’m going to get her through this.

“I am grateful to everyone who has fund-raised for Megan. I feel like I have to apologise for the hold-up.

“We are still going ahead with it. We just have to get over this hurdle.”

The money raised from the campaign will eventually fund Megan’s treatment, after-care and travel to America.

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