West Cumbrian family's plea to help their little boy
Last updated at 12:33, Friday, 14 September 2012
A Maryport couple are desperately seeking help to get the brain surgery that could give quality to the life of their nine-year-old son.
Aaron Jarvis, of Ewanrigg Road, suffered a stroke while still in mother Angela’s womb.
He has been left with difficulties that have turned the family’s life into a nightmare of worry and need.
As well as suffering continual epileptic seizures, Aaron has cerebral palsy, severe learning difficulties, behavioural and sleeping difficulties.
He also suffers from obsessive compulsive behaviour, his sight is impaired and he is both hyperactive and has a lack of concentration.
Aaron needs 24-hour-a-day care and his father Darryl had to give up work as a builder to care for him.
Darryl said: “Angela can’t drive so I have given up work to be here to get him to hospital if he needs to go.
“I was never much of a drinker but used to enjoy a night out occasionally. I never touch drink now.
“I have to be ready and able to drive at any time. He is our priority.”
Doctors at Great Ormond Children’s Hospital in London are investigating the possibility of brain surgery which could help Aaron’s epilepsy.
It will not cure him but could give him improved concentration, which might help him to learn.
Doctors at Newcastle General Hospital and the West Cumberland Hospital in Whitehaven have tried new drugs for his epilepsy.
Great Ormond Street surgeons will decide if they can operate, but getting him there is another nightmare for the family.
Angela works as a carer, and with only one modest income the family are worried about costs.
They will have to make two trips to London before the operation even goes ahead and have no idea how long Aaron will be in hospital.
Angela and Darryl will accompany him to London while Angela’s mother looks after their two other children, Kieran, 14, and Amber, five.
Travelling on public transport is almost impossible because of Aaron’s behavioural problems and the need for emergency medical care that can arise at any moment.
The couple are also concerned about parking and other costs.
A charity night will be held for Aaron and his family on November 2 at the Flimby Social Club.
In the meantime, if anyone would like to help the family they can call Darryl on 07875731141.
First published at 11:54, Friday, 14 September 2012
Published by http://www.timesandstar.co.uk
Have your say
i feel really sorry for the little boy,he is so beautiful he does nt deserve what he has nd if u nd help just ask around. hope he gets better
Feel really sorry for the little boy.but I also have a disabled child,surely due to his care needs,e will be on the highest rate care ,also they will be entitled to carers allowance.and other benefits. I would sell my soul to get my son the medical help he needed. Contact the citizen's advice bureau for information on other help u can get.good luck.